General Category => What's Your Story? Tell us. => Topic started by: EnglishRose23 on December 26, 2017 at 09:46 PM

Title: Back for round 3
Post by: EnglishRose23 on December 26, 2017 at 09:46 PM
Here I am again!

This is pregnancy #5 for me.

#1 early miscarriage
#2 Heavy first trimester bleeding, PPROM at 21 weeks 6 days, vaginal birth at 24 weeks 1 day. Daughter Sophie lived almost 24 hours.
#3 early miscarriage
#4 First trimester bleeding, placenta previa from 12 weeks, cervical length scans (normal) and progesterone shots from 16 weeks, first round of preterm labor at 18 weeks 3 days, multiple rounds of heavy bleeding and preterm labor to follow, steroids at 24 weeks when they thought I'd deliver, ended up making it to 28 weeks 6 days and had an emergency c-section due to a placental abruption. Son Vincent initially spent 11 weeks in the NICU, he's had many trips back to the hospital since, but overall he is a happy thriving 3.5yr old.

#5 Crazily enough this is a planned pregnancy, I'm 6 weeks along now but it's not been going smoothly. Bad cramping from before I even had my first pregnancy test, gets much worse with even light activity. Sunday night I had my first bleed and it was a massive one, I was up all night changing pads and passing golf ball sized clots of blood in the toilet. It stopped as suddenly as it started, had an ultrasound today to confirm the miscarriage and baby was still in there, healthy and normal with a heartbeat. It was right at the 6 week mark I bled heavily with my other children, so apparently this is something I do. So now I'm on bedrest for the week, I'm sure there will be more to follow. I've lost track of how many weeks of bedrest and hospital bedrest I clocked up between Vincent and Sophie but it was A LOT. I have a uterine septum that I've had surgery to remove but some still remains, I'm being considered "high-risk" again and being seen by MFM once I've made it past my first trimester.

It's going to be a bumpy ride! I'm already finding bedrest so much harder than I did before, I stay home to care for my son so it's not something I can take a break from really. He's trying his best to help mom out so far though <3
Title: Re: Back for round 3
Post by: Angela on December 28, 2017 at 06:30 PM
English Rose! I can't believe you're back! How exciting! I'm sorry though that you're certainly off to a rough start. Must have been a happy surprise to know your little one is safe. I will certainly be thinking of you and praying for an easier road ahead for you. Keep me posted, okay?  :-*
Title: Re: Back for round 3
Post by: EnglishRose23 on December 29, 2017 at 07:27 PM
Thanks Angela :)
Title: Re: Back for round 3
Post by: EnglishRose23 on January 06, 2018 at 11:49 AM
so some good news and some bad news:

Good news: Baby was doing well on my 7 weeks scan, good heartbeat and growth, and no new bleeds so I'm back to light activity, just need to rest when the cramping gets really bad, next scan at 9 weeks.

Bad news: There will be blood. Dr said the lining on the uterus right of my septum is already building up again for another "cycle" and isn't onboard with the pregnancy yet (baby is on the left). So there will definitely be more bleeding before the end of my first trimester, just have to hope it doesn't harm the pregnancy when the contractions to get rid of that blood start up again. I'm also super worried that I'm pregnant on my left, since I carried both my children on my right side before which means I've just lost any hope from my uterus having been stretched out all the way to 28 weeks that it can get that far again (my non-pregnant half of the uterus doesn't really expand with pregnancy, just gets pushed off to one side). Who knows though, maybe left is my good side!!
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on January 15, 2018 at 08:28 PM
How are you going? Hope things are going ok :)
Title: Re: Back for round 3
Post by: EnglishRose23 on February 02, 2018 at 10:18 PM
Another update:  had my first MFM appointment, as predicted the plan is cervical length checks every 2 weeks from and weekly makena shots starting at 16 weeks, although the dr wasn't optimistic either will do much for me.  They'll also be doing ultrasounds to monitor growth every month. Good news is they'll let me attempt a VBAC even if baby is premature, and this hospital will attempt to resuscitate a baby born at 22 weeks if we insisted on it (odds are terrible, but not hopeless). I'm 11 weeks 4 days today, baby was bouncing all over the place for my scan, and had normal growth and heartrate. Everything was looking good until I'd been home a couple of hours and another big bleed started. They had me turn around and come back in. Cervix closed and normal, baby still looking good, but my non-pregnant uterine horn was bloated and swollen with blood. I'm back on bedrest and it's going to be a rough weekend to pass all that without losing the baby. Back for another scan on monday. They think it's my body attempting another period despite all wisdom to the contrary  :-\
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on February 04, 2018 at 04:44 PM
Oh no. How frustrating for you that you are back on bed rest! It will be worth it for your beautiful bub tho. That's good that your baby has a good heart rate and growth is good too. And cervix closed. That's good news, despite the bleeding. I hope the bleeding stops soon though. That would be very stressful for you.

I am so glad your hospital does try and save bub at 22 weeks if you insist! Ours won't budge from less than 24 weeks. That is great news that they will give your baby a chance if it arrives that early. Hopefully it doesn't tho!

I hope your scan on Monday goes well and bub is hanging on in there :)
Title: Re: Back for round 3
Post by: EnglishRose23 on February 05, 2018 at 07:45 PM
Scan went OK today, baby still looks great and doesn't seem bothered by the bleeding and constant cramping. Bleed has slowed down and is more clots and old brown blood at this point, but my dr still thinks they can see an active bleed on the scan with more blood pooled to come out. They seem to think light activity is ok for me as long as I'm not have any gushes of red blood, so I'm doing my best to find the right balance between resting and getting on with my life!
How are you doing? Still stuck in bed? We've made it through our first trimester now  ;D ;D ;D

p.s. I would call around any other hospitals within a 5 hour drive of you and talk to them about their policies, it is hard to find places that will attempt 22 weeks, but 23 weeks is becoming standard care especially if baby is a girl the odds are beginning to improve at that point.
Title: Re: Back for round 3
Post by: EnglishRose23 on February 09, 2018 at 08:38 AM
Bah, it got worse with a large gush of red blood wednesday evening that went right through my pad and jeans. They had me come back in for ANOTHER scan, the active bleed has expanded inside the uterus, there's some behind the placenta now too and it's getting large enough to threaten the pregnancy. My cervix is still closed and baby still had a good heartbeat but my dr seems to think late miscarriage is my most likely outcome. She said if I was further along they'd call it an abruption and stick me on hospital bedrest, but with it being so early there is nothing they can do for baby so I just need to wait and see at home and go to the hospital if the bleeding increases to the point where it would be a threat to my health. She said it's basically up to me if I want to come in for a scan after each big bleed, since they know it's there and they aren't expecting it to let up anytime soon but if I need the reassurance of seeing a heartbeat they'll always fit me in on the schedule. IF I make it to viability, hospital bedrest is very likely, as they seem to think this bleed will come and go till whenever I deliver. I've been pretty much in constant pain with the cramping too, I really suck at pregnancy!!!!
Title: Re: Back for round 3
Post by: OBmom on February 15, 2018 at 07:42 AM
Hey English Rose.

Just wandering if there are any updates?
The " I suck at pregnancy" thing really stuck with me, I've had that feeling too. Please don't beat yourself up, this is NOT your fault or anything you could change. Nobody wants this baby to be okay and have a chance more than you. Therefore, you're this baby's best shot.

Bed rest sucks, and it's even more frustrating if we're not that sure it is even helping. But we keep on doing whatever we can right? Just hang in there, and keep hoping for the best!
Title: Re: Back for round 3
Post by: EnglishRose23 on February 15, 2018 at 08:04 PM
Hi OBmom,

Thanks for asking, after waking in pain several times last night I've been bleeding heavily and passing large clots since this afternoon. I suspect this is the end of the road for this baby. I'd had a bad feeling about it all day yesterday and now the pain and bleeding seems to be confirming what my intuition was already telling me. Waiting till I see for sure on the scan tomorrow before I give up all hope though.
Title: Re: Back for round 3
Post by: EnglishRose23 on February 16, 2018 at 06:39 PM
Wow, false alarm. after being in pain all night, bleeding through a ridiculous amount of pads, and catching and inspecting every large clot I passed in case it was the baby...suddenly around 4am the bleed stopped. Had my scan at lunchtime and baby was wiggling and kicking like nothing had happened, even better the multiple large SCHs that had been visible on my last scan were gone...they were the clots I was passing. Despite contractions with the bleed, and that "full" need-to-bear-down kind of feeling I had with it, my cervix was closed when they checked!! I should be elated, mostly I'm just emotionally exhausted from almost losing this baby over and over again. Hoping and hoping and hoping things get smoother from here on out.

Edited to add, one thing she did mention after the exam was that my cervix was "soft" even though it felt long enough and closed. Not sure how concerned I should be about this, wondering if I should push for getting my first cervical length check before 16 weeks...thoughts?
Title: Re: Back for round 3
Post by: OBmom on February 17, 2018 at 06:42 AM
Hooray for false alarms!  ;D

I can't imagine how exhausted you must be. Just the stress of dealing with the bleeding and the possible outcomes day in and day out is enough to send anyone off their rockers.

Great news about all those clots passing, eh? More room for your little one inside!
Speaking of room, make sure your bowel is working properly (i.e. daily) and without needing too much effort. Try a mild laxative if it helps to get along. No need for the extra pelvic pressure.

Even through the Ultrasound probe we can get a feel for the cervix - "soft" in your case probably feels like "mushy". It's just a warning sign but pretty much what you'd expect in your case. You can check for cervical length before 16 weeks but the predictive value isn't great. Also, the more we probe around in there, the more we stimulate ctxs.

Have you started progesterone yet?
I would definitely discuss placing a pessary. Cerclage not so much, not with previous history of PPROM and uterine structure anomaly. Also, a little bit of cervical opening is good for draining. We don't want those clots staying inside and causing inflammation..

Anything to look forward to this week? Sending lots of patience and good vibes your way!
Title: Re: Back for round 3
Post by: EnglishRose23 on February 17, 2018 at 10:02 AM
Thank you so much for your detailed response. I will definitely bring up the pessary with my dr although honestly the size of the clots I passed the other day I doubt they'd have made it through the tiny hole left by the pessary (biggest one I was able to save was 5"x 3"). I would worry about the clots and blood not being able to get out and making my angry uterus even more irritated. My MFM had discussed cerclage but not pessary as an option if my cervical length scans were concerning, I'm wondering if it is a less common option here in the USA.

They checked my cervix via a speculum exam and then manually feeling it, which is when she commented on it being soft...sounded like a good thing at the time (i.e. it's only soft, you aren't dilated at all!), the ultrasound tech didn't do a cervical length measurement on my scan that time. With my last pregnancy my cervical lengths were all good so it's still uncertain if cervical incompetence is on my list of problems, although they never felt the cervix last time because of my previa, so maybe it was softening then too and we just didn't know.

I'm relieved to have stayed regular so far and not needed to strain, I have a fairly high fiber vegetarian diet to begin with, but always found I needed the stool softeners for strict hospital bedrest!

This week my hubby has a 4 day weekend, so I'll get to rest a little more and give that bleed time to settle down. Blood was dark purple this morning which was a new one for me! My current medical team aren't big believers in bedrest, but right now I'm self-imposing staying off my feet completely on my husbands days off and doing only the bare minimum of moving around during the week since just about any activity sets off the cramping.

I'll be starting my progesterone shots right at 16 weeks along with a good dose of the migraines that accompany them! I wish there were more dosing options for the shots, last time I would find they helped settle my uterus for the first 4 days, and then it would be irritated/contracting on the 3 days before my next shot was due.
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on February 20, 2018 at 12:42 AM
Oh no! Sorry to hear that you have been having more complications again. Hopefully your bleeding settles down soon. The progesterone shots sound like they could be helpful. Can u get them more frequently than once a week? How is bub doing? Hopefully all is well with bub and he or she is growing well. I am glad you can rest on the days that your hubby is home. I think it could make a big difference. :)
Title: Re: Back for round 3
Post by: EnglishRose23 on February 20, 2018 at 07:51 PM
Thanks. I seem to have settled down to a status quo of light bleeding and heavy cramping. Baby was still showing normal growth on scan. Unfortunately once a week is the only option for the shots. Since I'm doing them at home I could theoretically break up the dose if I was so inclined, but I would never take the risk of going an untested route like that. My husband has been great so far with understanding the need for me to be off my feet, I think he worries as much as I do!

Have things been going smoothly for you and your baby lately?

I may be MIA from the forum for a while after shots start since I can't manage electronics while I have a migraine.
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on February 22, 2018 at 08:54 PM
That's good your bleeding is only light again. Sucks about the cramping tho! I hope it stops soon. That sounds worrying. I am glad your husband is being a good support for you though. That makes a big difference having support. :) And that is great news that bub  is growing well. That makes sense about the injections.

I have had another scan and a blood test and since that was done, baby has come back as high risk for Downs Syndrome. I have very very low Papp a and they are saying there is a high chance he or she will be Premmie and maybe have Iugr. I was offered an amnio and a  nipt test. We have decided not to do the amnio as the risk of miscarriage is too great, especially with the complications I have had already. We will love our baby regardless. It would be good to find out tho so we can be prepared. Honestly, I amuch more worried about the low Papp a, as I had premature labour with my last, and I didn't want it to happen again!  Only 9 weeks now till viability  tho so that is encouraging. Once  bub gets to 24 weeks I will feel so much better ,I think.
Title: Re: Back for round 3
Post by: EnglishRose23 on February 23, 2018 at 11:24 AM
So sorry to hear about your test results, I'm assuming at this point it is still just a strong possibility as opposed to a definitive diagnosis? I'm also being followed for IUGR because of my uterine abnormality, is your baby still measuring on target at this point?

We opted out of the screenings, because I figured we didn't need one more thing to worry about if any of the results came back as high risk. You do make a good point about the information giving you chance to prepare though.

Not expecting my cramping to stop anytime soon since I haven't had a day without it since 4 weeks. My uterus just seems to be really angry about this whole thing.   Spent a good part of the last 24 hours with a weird pain in addition to the cramps, felt like something tearing in there but it didn't seem to trigger a new bleed so I'm hoping it was nothing. I have pretty bad endometriosis, so it could be some of the things stuck together ripping apart as my uterus expands. My right ovary is glued to my uterine wall so I've been pretty worried about that rupturing as my uterus gets bigger but so far it's hanging in there!

We have made our peace with the fact that this baby will be a preemie, haven't seen a single doctor yet that believes we have even an outside shot at a full term baby, just hoping to make it to viability, and then past the scariest micro-preemie stage, any extra days we get beyond that are a gift.

We will be celebrating with cake at the 24 week mark...hope you will join us on the other side of the ocean ;)
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on February 23, 2018 at 05:29 PM
Thanks. :) Yeah at the moment it's not definite. Have to wait for more results to know for sure. I kind of wish I had never done the testing now,, because it is another thing to stress about!! You are exactly right. I didn't run expect to have this result though, when I  did the testing. But now I feel like I need to know.

At the moment, baby's growth is tracking on nicely too. Have another scan on Monday, so I am hoping that goes well. I may also find out the gender if bub is in a good position...Hope so! Lol. I am really keen to find out!

Oh no. The endometriosis, your ovary, along with all your cramps etc sounds really painful! It will be worth it in the end tho. :)

Celebrating with cake at 24 weeks is a great idea! I hope to be celebrating alongside you 😀 It's such a big milestone! Hope the time passes quickly for us. Hopefully you will get well past the micropremmie stage. :) Will you be getting steroid shots at 24 weeks? I will be asking for them as soon as possible :)
Title: Re: Back for round 3
Post by: EnglishRose23 on March 08, 2018 at 10:05 AM
so here I go with more pregnancy drama. After going 6 whole days without bleeding, out of nowhere yesterday I started up with painful contractions 3 mins apart. Tried to ride them out, ignore them, lay down drink lots of water and hope they'd go away but they kept up and when they got more painful after 4 hours I finally called my OB and they sent me straight to labor and delivery.  I was still reluctant to go since it meant driving 45 mins through a snowstorm to get to the hospital, but worried that if I ignored them I might miss the window where a rescue cerclage could have helped.

Hospital staff was great, had read my file and reviewed all my recent scans so they were very prepared when I got there. Got me checked in and quickly sent me for an ultrasound to measure cervical length and amniotic fluids and check for bleeds. Thankfully everything looked good on the scan, they gave me the option to stay the night in case things got worse, or go home. I went home and finally around 2am the contractions slowed down and then stopped. I'm exhausted this morning but my uterus is calm right now. I'm pretty depressed how early this is happening, I made it to 18 weeks before contractions started last time so contractions at 16 weeks doesn't bode well for me, I'm worried it will result in another abruption or PPROM or turn into genuine preterm labor. I've a feeling my hospital visit yesterday is going to be the first of many.

One thing I'll share that I was very grateful for; when I'd seen my OB earlier in the week I'd specifically discussed with her what the plan would be if/when I started contracting. I guess usually at this gestation women get sent to the ER for evaluation, but because of my history she added a note to my file that I was to be sent to L&D for any problems instead, this really helped with the stress of it all last night not having to wait for hours in a crowded ER.

Back to the office for a follow-up visit tomorrow, hopefully everything still looks ok then.
Title: Re: Back for round 3
Post by: OBmom on March 09, 2018 at 03:48 AM
Oh no lady!

Can't believe the stress you went through, 45 min in a snowstorm must seem like a horribly long time.
Great news that you were sent straight to L&D. Waiting for hours in the wrong place at this point could be catastrophic. But thank goodness the team was up-to-par on your records. And it's super news that everything was fine with your CL!
Just out of curiosity: do they start an IV fluid drip for your contractions? Sometimes we do, it's just so much faster than drinking water.
From what I understood from your post, no new bleeding right? That's something to celebrate all on it's own!
I'll be hoping to hear from your follow up appointment. Hope everything's stable and you managed to get some rest.
I also have an ultrasound later today, I'll share the news I get after.
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on March 09, 2018 at 03:48 PM
Oh no! How stressful for you!! I am so glad your bub is ok. That's good that you have good CL and the hospital was well prepared for you tho. I hope you have no more contractions from now on for a good while!  Let us know how your follow up visit goes? :)
Title: Re: Back for round 3
Post by: EnglishRose23 on March 09, 2018 at 04:04 PM
Follow up was uneventful. I'm still cramping but no bleeding, contractions or fluid loss. OB decided against a speculum exam since they are worried even that slight disturbance could set me off again (was the same thing at the hospital, at this point they barely dare to touch me lol). Most of the appointment was just answering my questions about various interventions (I'd need to be transferred to a bigger hospital if a rescue cerclage was indicated, but might not be something they'd do anyway if I'm booming out contractions). Apparently I still need to go to hospital every time contractions start up though since a miscarriage at this stage isn't safe to DIY at home.

I thought the dr would look at me like I was crazy when she asked me what I thought triggered the contractions; my answer, the winter storm. (background here: after 2+ weeks of being stable after PPROMing with my daughter in 2012 I went into labor when a major summer storm rolled in. I wasn't the only one either, L&D was so busy that night they had women curtained off giving birth in the hallways. I had to hold off pushing at 10cm dilated while they got a room ready for me)

My migraines are always super sensitive to changes in barometric pressure, and the night before these contractions started it I was feeling it, super restless, up a lot in the night with nausea and headaches, struggled with migraine aura all morning before I went from cramping to contractions, and once the storm passed things seemed to settle down again. Anyway my OB seemed to agree that this was a possibility, I guess it's something they notice with storms in the L&D ward even if it's not been scientifically proven. Unfortunately there's not much I can do to protect myself from the weather patterns.

OBmom to answer your question, no new bleeding (hooray!), and they didn't put me on an IV drip since I was already super well hydrated, but that is common practice here too. (that's one thing I do well; I track my water consumption throughout the day and increase it if my urine looks even a tiny bit yellow). Good luck with your ultrasound today!
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on March 15, 2018 at 08:19 PM
That's really good news that you aren't bleeding or having contractions, etc.

I have heard that about storms triggering labour as well. So strange. I hope that you don't have any more storms for a long while!
Title: Re: Back for round 3
Post by: EnglishRose23 on March 16, 2018 at 04:54 PM
Had my anatomy scan today. It was a little early so they have to check a few things on my next scan too, but everything seemed healthy today. Cervical length still normal which is good since painful regular contractions are a daily occurrence for me now usually lasting a few hours at a time. No new bleeds so I've gone a few weeks without losing blood now  ;D

Baby girl was measuring about a week small on everything, which the dr seemed completely unconcerned about. I'm a little more worried since she'd been measuring perfect or a day over for her dates up to this point, and between my many early scans and the fact that we were tracking ovulation when I conceived there isn't a shadow of doubt on my dating. Also concerning for me was the fact that the placenta is completely covering my septum, the dr didn't really have much to say about it, but I'm sure it is not a good thing since there isn't normal blood flow to my septum.

It was bad news on my dogs CT this week so now having to figure out how to manage either end-of-life care for him or taking him a long way for radiation therapy without putting any strain on my pregnancy. No such thing as a good time for a loved pet to get sick but this is definitively a bad time for it to happen.
Title: Re: Back for round 3
Post by: OBmom on March 17, 2018 at 05:21 AM
Hey English Rose.

Sorry to hear about your dog, such sad news :( It must be hard dealing with that on top of your complicated pregnancy.

I was glad to hear about your baby normal anatomy scan though! I hear your concerns on her growth. I am part of the team that runs the fetal growth restriction program in my center, so I literally have any info you might need on this. Placenta settled on the septum is likely to get less blood flow, and that can limit the baby's development in terms of weight. But the most important thing is not how much she's measuring, but if she's maintaining her regular growth curve. Meaning, she may be a small baby as long as she's consistently small (no "drop in growth centile"). It's a shame the drugs that could potentially help blood flow to your placenta (like enoxaparin and aspirine) are also blood thinners - you're not a candidate because of the SCH, they might restart your bleeds..

Things to go over with your doctor:
- growth scans every two weeks - no point in doing then with less time in between, baby's growth doesn't happen overnight.
- try and have always the same US tech / doctor perform the scans - this improves accuracy and you won't have so much fluctuation from scan to scan.
- ask about your uterine blood flow - they can do Doppler scans of the uterine arteries and see if there's any added risk of fetal growth impairment.
- I don't know if your current weight gain is on target, but consider supplements - high protein / high calories shakes, yogurts, etc.. We have some in powder-form to mix in with your regular food. This is just meant to boost your little girl's uptake. We only recommend this if we start suspecting she won't have the possibility of reaching term.

Anyways, you have a perfect little girl, good cervical length and no new bleeds. There's always something to be grateful for. :) Keep up the good work momma!
Title: Re: Back for round 3
Post by: Anish on March 17, 2018 at 09:23 AM
Sending hugs and prayers your way. You got this mama :)
Title: Re: Back for round 3
Post by: EnglishRose23 on March 18, 2018 at 12:40 PM
Thanks OBMom, that is really helpful info on baby's growth. Right now I'm scheduled for monthly growth checks but I will ask at my next scan if they think bumping me up to every two weeks would be appropriate. Luckily my weight gain is right on target for now, I am a stress eater so I would be way over the ideal weight gain if I didn't still have some mild nausea keeping me in check!

I'm trying to remind myself that a small baby might actually be a good thing for me; if my deformed uterus has a maximum stretching capacity, then giving birth to  small 32 weeker might be better than giving birth to a normal size 28 weeker for example.

I'll be asking my doctors this question too, but do you reckon if I go long enough without a bleed I might be a candidate for the blood thinners? My practice likes to rotate between drs for appointments, which I don't care for, but I'll see if they can at least schedule me to see the same US tech each time.
Title: Re: Back for round 3
Post by: reasontohope on March 20, 2018 at 10:03 AM
Before all my cervical length issues, I had a "small" SCH that bled/spotted from weeks 11-16 or so. I was on blood thinners the whole pregnancy because of previous clotting issues, and while my doctors had me reduce the dosage overall and go off entirely for the 4ish days of bright red blood, they never suggested not continuing Lovenox, even while the SCH was still visible on the scans. I settled around 40 mg Lovenox before switching to heparin at around 30 weeks.
Title: Re: Back for round 3
Post by: OBmom on March 20, 2018 at 01:33 PM
I completely agree with the medical decisions. that were taken in your case. Blood thinners can and should be given and maintained throughout pregnancy to prevent potentially fatal complications for the mother (like a pulmonary embolism). This trumps the risk of bleeding or miscarriage due to SCH.

In fetal growth restriction (FGR) however, aspirine is most effective if started up to 16 weeks (that's when the placenta is forming). As for Lovenox - enoxaparin - it's use in FGR is still in the experimental field. We use it because we know it might help, but the studies are still ongoing.
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on March 27, 2018 at 11:16 PM
Hi English Rose :)
Sorry I haven't checked in in a while! I'm so sorry to hear about your dog. That sounds really hard. :( I hope your baby girl is still growing well? Have u had another scan since your last update? :)
Title: Re: Back for round 3
Post by: EnglishRose23 on March 30, 2018 at 06:09 PM
Had just a cervical length check yesterday,  still over 3cm so no worries there. we decided to persue treatment for our dog so my hubby will be gone all week to bring him to a specialist.  Little nervous about something going wrong with the pregnancy while he's gone since I won't be able to be off my feet as much but I am stablish going into the week at least!  Hoping for a good growth scan in two weeks  :)
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on April 01, 2018 at 04:46 PM
Thats great news about the cl! I am so happy for you :) I hope you can try and take it easy despite your husband being away. It would be a bit harder without the extra help. Maybe just try and do only the bare minimum?

Awe, I hope the treatment works well for your dog. We have two dogs and they are part of the family, so I can imagine it would be worrying with him not well.

Good luck for your next scan :) Getting closer to viability now!! How exciting!
Title: Re: Back for round 3
Post by: EnglishRose23 on April 17, 2018 at 10:33 AM
Another update, went to L&D yesterday for severe cramping and back pain since Saturday. They found me fingertip dilated so kept me overnight for observation and possible cerclage.

Looks like i'll get to go home today since the ultrasound this morning still showed 3cm of cervix despite significant funneling and the slight dilation. Dr thinks risks outweigh the benefits at this point since he's worried putting a stitch in would irritate things even more and might not help since it's really the uterine septum that's my underlying issue not cervical incompetence. Couldn't sleep last night for close painful contractions but at least this morning it has returned to the more crampy feeling that I came in with. Will need to turn around and come right back in if things get worse. I'm frustrated that they aren't giving me more treatment options at this point. They won't prescribe any maintenance tolycotics and have recently changed hospital policy so they no longer run FFN tests.

I don't feel like I'm going to deliver in the next day or two but at the same time not feeling like I have long left either.  On the plus side no new bleeds and amniotic fluid levels look normal.
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on April 18, 2018 at 11:29 PM
Awe that sounds so scary for you! I am glad you still have 3cm of cervix left. The dialation doesn't sound good tho. I hope you can take it really easy over the next few days especially :) Hopefully your bub can hang tight for a while longer.

I can't believe they won't run ffn tests! Or prescribe something to stop the cramping and contractions :( How many weeks are you today? I think you are the same as me?? Can u ask to speak to another dr or complain?

 In our hospital we have a thing called Ryan's rule, where we can ring and put a complaint in for better care if we feel we aren't being cared for well or listened to. And the organisation will directly call the hospital and liaison for us and send out  a skilled dr from another hospital for a 2nd opinion of treatment. Do you have anything like that where you are?
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on April 18, 2018 at 11:30 PM
That rule doesn't just apply in our hospital. Typo. Lol. Pretty sure it is for all of Queensland. :) I hope you have more options soon to help you and bub.
Title: Re: Back for round 3
Post by: EnglishRose23 on April 19, 2018 at 10:38 AM
Good news, my uterus finally seems to be calming down. Bouts of contractions and cramping less frequent last night and this morning so I think we escaped with just a scare for now.

Wasn't really the individual dr that was the problem otherwise I would be complaining and asking for second opinions: hospital policy is only to prescribe things to stop contractions when you are in active labor and they are trying to buy enough time for the steroids to was the same thing at the hospital I went to with my previous pregnancies before we moved. Same with the FFN, hospital policy, not that it would have been particularly helpful anyway since I'm already receiving high-risk care, but a negative result might have given me a small bit of relief.

22 weeks 3 days now. Determined to make it to viability.

Unfortunately I've picked up my kids cough now, and I'm disproportionately scared of coughing hard enough to break my waters or trigger a new bleed. Been much more strict about staying off my feet this week, it was scary watching the cervical length scan since when they added only the gentlest bit of fundal pressure my internal os visibly collapsed from a V to a U (but still with enough cervix left underneath the U if that makes sense).

This was my first inpatient visit to this hospital and the nurses were great and the drs did listen just have their hands tied with what they can do at this point. I am really anxious about ending up with a longer hospital stay now though since I learned they have a very strict "no children under 12 rule" for the maternity ward and labor and delivery ward. i.e. I wouldn't be able to get any visits from my son the whole time I'm there. Will also need to wait for a babysitter to get here before going in to the hospital if I'm home alone with my son since I'm not even allowed to bring him in an emergent situation. This makes me so nervous since the hospital is an hour away and I take less than an hour to dilate 0-10cm so waiting around 30mins for help with my son could be disastrous.  My husband brought me in for my hospital visit this week but wasn't allowed back with me since our son was with him  >:(.

One good side note I can update on is our dog is doing great. We took out a big loan we can't afford and got him state-of-the-art stereotatic radiation therapy for his nasal cancer. He was a real trooper for it, went into each treatment wagging his tail and hasn't had a single side effect from the radiation. If we are lucky it will buy him another year or two so at least we won't be dealing with a dying dog and a critically ill infant at the same time.
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on April 19, 2018 at 08:57 PM
That is great everything seems to be calming down. Must be a huge relief for you! :)

22+3 is great! Not long now till viability at all!! :D I am 22+6. Had some bleeding again, so very nervous...Bub is still fine tho and they don't know why I am bleeding 😐 I just wish I could fast forward to 24 weeks!!

That makes sense about the hospital policy. I understand what you mean about the ffn tho. If would be a big relief to get a negative one :) I am glad the drs and nurses did listen though. I guess they are very limited before 24 weeks.

I hope your cough goes soon. Sounds like the worst time for you to have one! That sounds frustrating about the no children policy too :( I would feel lost if I couldn't see my kids! And a difficult situation if you have an emergency. You would think if you had an emergency they would understand!

Wow! That is fantastic that your dog is doing great :) Im so happy for you. Must be a big relief with that worry off your plate for now :)

Title: Re: Back for round 3
Post by: EnglishRose23 on April 20, 2018 at 07:07 PM
Thanks :) things have been even better today with hardly any pains. I hope your bleeding resolves quickly, nothing more terrifying than a fresh gush of blood. I'm surprised I've not had a new one start since I'm due based on my cyclical bleeding.

I'm surprised they didn't keep you as an inpatient for bleeding at this stage..was it just a small amount?
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on April 21, 2018 at 05:52 AM
That is good news :) So good you have hardly any pains. I hope you don't have any more bleeding again, especially since u haven't had any in a while. It's really stressful! I always freak out every time.

Thanks. Yes, it has stopped now. It wasn't a big lot, and only lasted almost a day, but it was bright red which always freaks me out! I don't think they wanted to keep me in because it wasn't heavy and I'm not 24 weeks yet? I am not sure... Bub is still kicking away well, with a good heartbeat, and everything looked fine tho so that is a big relief for me. I thought it could have been  my cl changing but it is still  the same for now. I am 23 weeks today too, and I am literally counting down the days till 24! Lol
Just trying to take it easy over the next few days especially.
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on April 21, 2018 at 06:00 AM
This is only at my local hospital too. I have had most of my appointments changed over to the bigger much better hospital because of being high risk and all the issues. But it is 4hrs away, so I had to go to our smaller local hospital. I feel like the Brisbane hospital would have been much more attentive. They help with babies at 23 weeks too, if they are born early.
Title: Re: Back for round 3
Post by: EnglishRose23 on April 25, 2018 at 09:36 PM
So all good news at my scan today, cervix was still stable (hooray for being done with cervical length checks), and baby had even caught up a little on growth. Today was her echo (she needed one because my son had a hole in his heart) and her heart looked perfect. I'm still funneling and slightly dilated but it hadn't progressed any from when I was in the hospital last week. Baby has been firmly wedged in a traverse position for 4 weeks now which makes me think she's running out of room for gymnastics in there, but I think that's a blessing since it is keeping her weight of my cervix.

They still aren't happy with the amount of cramping and contractions i'm having but not much they can do about it.  Dr did threaten me with a longer inpatient stay if things get any worse but I'm home for now and treasuring that privilege.

Today is 23+2  ;D

@jadeandrainbowbub that's great that your bleeding stopped already :) we are getting so close to real hope now.

Title: Re: Back for round 3
Post by: Jadeandrainbowbub on April 26, 2018 at 05:53 AM
That is great news that your Cl is stable! :) And fantastic she is growing well and her heart looks perfect! I am so happy for you :)

It's great you are home now too. I do hope the contractions Nd cramping stops. 23+2 is fantastic as well :) I am 23+5 today. And starting to feel a bit calmer each extra day gained :)

Title: Re: Back for round 3
Post by: littlemissamanda on April 26, 2018 at 08:35 AM
Hi 23 week ladies!

I haven't been on here so much so it's taken me a while to catch-up on everything. It seems like this journey is a never-ending rollercoaster of ups and downs, but we are all getting lots of positive up moments right now. Yay for stable cervixes and strong heartbeats!

I had my last cervical check this week and my cervix is still strong at over 3cm. I'm updating my other post in a moment, just because I was disappointed with some of the care I received. But the little stinker is moving around much more so that is reassuring.

Take care! Only days until we are at week 24 :)
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on April 28, 2018 at 01:13 AM
@littlemissamanda - That's great news! And glad to hear your little one is moving lots :) My little boy is more active too. It's  very cute.

Sorry to hear that you are disappointed with your care tho. Thats no good. I hope you get better care from now on.

 I am 24 weeks today! Getting exciting now! I feel so so relieved to have made it this far!
Title: Re: Back for round 3
Post by: mekvien on May 09, 2018 at 03:51 PM
I just read through this whole thread, curious how all of you are doing now??
Title: Re: Back for round 3
Post by: EnglishRose23 on May 09, 2018 at 05:05 PM
Hi Mekvien,

Welcome to the group, I'm still hanging in there at 25+2. Less contractions this week so things might be settling down for me. Shows how much pregnancy drama you can have and still keep cooking!
Title: Re: Back for round 3
Post by: mekvien on May 09, 2018 at 08:35 PM
Thats wonderful!! I totally agree....on days I am less stressed out/my kids dont cause me to be crazy mama, I have less contractions.  I am 26 and 3 today.
Title: Re: Back for round 3
Post by: EnglishRose23 on May 21, 2018 at 07:00 PM
UPDATE at 27 weeks:

Had a checkup and scan today with mixed news...good news is baby girl is growing well, and even better my placenta is no longer covering my septum which means better bloodflow for her.

Bad news is my cervix is shorter (although they only looked on the abdominal scan and she said it wasn't a very accurate measurement since my bladder was empty) down to just over 2cm. I mentioned to my dr that I'd had a little bloody mucous on Friday so they did an internal exam and said the outer part is open but inside is still closed, some funneling on the scan too so I guess that means the cervix left is in the middle??

More bad news I failed my 3 hr glucose, so officially diagnosed with gestational diabetes, which is just an unnecessary extra insult from my body. Glucose monitoring this week and probably starting insulin next week. My diet is already really good and obviously exercise out of the question so not a lot I can do for it  >:(
Title: Re: Back for round 3
Post by: Lauren on May 22, 2018 at 09:47 AM
These pregnancies are so hard. Sorry to hear about the mixed results on your ultrasound and the positive GD test. As if any of us need more anxiety added onto this experience.

Luckily, your cervix sounds like it still has some decent length and your in the hands of experienced, caring, and competent medical professionals.

Anyways, just wanted to let you know that I’m thinking of you and wishing you all the best.
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on May 22, 2018 at 07:25 PM
That's great news that your little girl is growing  and you have better blood flow to the placenta! 27 weeks is awesome too! Past the micro Premmie stage!

That sucks about the GD and the cervix length being shorter. Hopefully you don't have any more contractions and you can cook bub for much longer :)
Title: Re: Back for round 3
Post by: EnglishRose23 on June 01, 2018 at 09:44 AM
Quick update on the gestational diabetes, met with the nutritionist who basically told me my diet was perfect don't change anything! Had a trip to the OB after a week of monitoring my blood sugars and they weren't happy with the numbers so starting on insulin, the long acting kind, levemir, every night to see if that helps bring down my fasting numbers, on day 3 now and it hasn't made a dent so my dose goes up tonight.

Interesting my worst fasting number was after I'd done my Makena shot the night before, I went back and looked at the patient insert for it and it does warn that it can decrease glucose tolerance and put you at an increased risk of GD (I had other risk factors too like PCOS and being overweight, so I can't exactly put all the blame on the shots)

Now I'm on insulin I have to go in every week. Still getting growth scans every 4 weeks, and then if I reach 32 weeks they will make me come in twice a week for NSTs. She even mentioned that they won't let me go past 39 weeks with GD, which made me laugh.

I'd had it in the back of my mind that if by some miracle I made it to term, that I would switch providers and go with midwife care either at home or in a birthing center to give me more control over the birthing process being the way I want it to be, but that is out the window now, stuck with high-risk and a hospital birth the whole way grrr.

Baby girl is so active in there, after spending a whole month stuck traverse early in the pregnancy she now seems determined to change position multiple time a day which feels really weird. My other two were big kickers but didn't spend all day doing somersaults the way she is!!
Title: Re: Back for round 3
Post by: Lauren on June 01, 2018 at 10:25 AM
Hey EnglishRose!
Too bad about the GD and the transition to insulin shots. I can imagine that it’s frustrating to deal with that on top of everything else.
So cute about your little girl doing somersaults. I think mine changes position frequently, too. This morning, baby is in just the right position to feel ALL the hiccups. So cute.
Wishing you all the best with the 39 week goal! It seems impossible some days, but I keep repeating my mantra, “this baby will be happy, healthy, thriving, and full term!”
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on June 02, 2018 at 09:39 PM
Oh that sucks about having to have insulin shots! I do hope it helps control the GD tho :) How cute your little girl is so active too! She must be doing well in there :)
Title: Re: Back for round 3
Post by: EnglishRose23 on June 13, 2018 at 11:59 PM
Well here we go again,  after a calm week I started up with contractions every 2 minutes.  No further dilated when I got to the hospital but started a heavy bleed a few hours after being admitted. Me and baby still hanging in there despite the abruption. Steriods and magnesium but no signs of contractions letting up. She's breech so will be a c section if they have to deliver. Haven't broke my waters yet at least.  30 + 3 now and grateful to have made it this far.
Title: Re: Back for round 3
Post by: Lauren on June 14, 2018 at 10:23 AM
Congratulations on making it to 30+3!! Your baby has an excellent chance of surviving and thriving!

Crossing my fingers for you that the bleed and contractions slow down so you can keep on cooking for a while longer, but wishing you the best either way!

Sending lots of love ??
Title: Re: Back for round 3
Post by: EnglishRose23 on June 14, 2018 at 11:55 AM
Thank you :)

 Positive update for today,  after a long rough night of heavy contractions every 2 mins and blood everywhere, things have somehow settled down today.  The contractions are much further apart and I've  been only  spotting for the past few hours.

Persuaded drs to finally let me eat but they still won't be sending me home anytime soon since my scan showed a significant pocket of blood behind my placenta. Baby has looked great on the monitor and my blood work has been good so far too. So lots of reasons to be optimistic.
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on June 15, 2018 at 07:22 AM
I'm so glad things have settled down for you and bub is ok in there :) Hopefully you can keep her in a little longer. You have done so well to get her this far too!
Title: Re: Back for round 3
Post by: EnglishRose23 on June 15, 2018 at 01:03 PM
Thanks.  Official decision from drs today is hospital the rest of the way :-( but every day I'm in hospital might be one less NICU day for baby so staying positive.
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on June 15, 2018 at 06:02 PM
Oh that sucks you will be in hospital from now on. It is the best thing for bub tho. And yep, every day in will make a huge difference for her! :) I hope you can get a little further to make her journey easier.
Title: Re: Back for round 3
Post by: Lauren on June 16, 2018 at 11:31 AM
So sorry to hear that you will be in the hospital. It’s so hard to be away from family and the comforts of home.
When we spent a week in hospital last year, I found that fresh fruit and real cheese and proper bread/crackers ended up being the best thing for people to bring. Hospital food is the worst!!

Hoping the bleeding settles down so that baby can stay a little longer and so that your nerves can settle :)
Title: Re: Back for round 3
Post by: EnglishRose23 on June 16, 2018 at 03:20 PM
Done cooking.  Waiting in line for the OR.  Bleeding, contracting and 4 cm dilated.  30 weeks 5 days.  Wish us luck!  Hoping my hubby gets here in time for the delivery.
Title: Re: Back for round 3
Post by: OBmom on June 16, 2018 at 04:30 PM
Best of luck!
Wishing you all the best, hope your little one stays for the shortest possible time in the NICU.
Positive everything coming your way.
Title: Re: Back for round 3
Post by: Charlotte on June 16, 2018 at 07:52 PM
Best of luck!!! Keep us posted! Hope everything goes well! <3
Title: Re: Back for round 3
Post by: mekvien on June 16, 2018 at 08:04 PM
Thinking of you!!!
Title: Re: Back for round 3
Post by: Lauren on June 17, 2018 at 10:56 AM
Sending so much love!!! You’ve got this!!!
Title: Re: Back for round 3
Post by: EnglishRose23 on June 17, 2018 at 07:09 PM
Thanks everyone.  My little girl has been doing well since her arrival. Recovering from my c-section and getting settled into our new lives in the NICU for the next few months.  She weighed 3 lbs 3 oz the exact same as her big brother, but the difference the extra 2 weeks made is really noticeable,  she is so much more comfortable and stable than he was when he was born.

Thanks for all the support through a difficult pregnancy, i'll be checking in every so often to see how your stories end :)
Title: Re: Back for round 3
Post by: Charlotte on June 17, 2018 at 08:33 PM
This is good news EnglishRose23! Looking forward to more updates from you. Thinking of you. <3
Title: Re: Back for round 3
Post by: Lauren on June 17, 2018 at 11:16 PM
Glad to hear that your little girl is doing well!
Wishing you the shortest possible stay in the NICU!
Title: Re: Back for round 3
Post by: Jadeandrainbowbub on June 18, 2018 at 06:24 PM
Congratulations! I am so glad your little girl is doing well! :) You did so well to get as far as u did! I hope your NICU journey is uneventful and you can take your bubba home soon :)
Title: Re: Back for round 3
Post by: Sri on June 18, 2018 at 11:41 PM
Congratulations and best wishes!
Title: Re: Back for round 3
Post by: jmomma on June 20, 2018 at 12:59 PM
Congratulations on making it this far EnglishRose! Prayers that your NICU stay goes well and your baby grows and thrives.
Title: Re: Back for round 3
Post by: littlemissamanda on June 25, 2018 at 05:30 PM
So late to the news. Congratulations, EnglishRose. Hope your little one is continuing to do well and your NICU stay is as short as possible.
Title: Re: Back for round 3
Post by: allimarie80 on July 24, 2018 at 09:54 PM
Wow! What a read. I'm new to the forum and I just wanted to with you and your family the best of luck in the NICU and you are a trooper! I'm so happy that after all the scares and heartache you have your sweet girl with you.