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Messages - Jadeandrainbowbub

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1
What's Your Story? Tell us. / Re: Back for round 3
« on: June 18, 2018 at 10:24 PM »
Congratulations! I am so glad your little girl is doing well! :) You did so well to get as far as u did! I hope your NICU journey is uneventful and you can take your bubba home soon :)

2
What's Your Story? Tell us. / Re: Back for round 3
« on: June 15, 2018 at 10:02 PM »
Oh that sucks you will be in hospital from now on. It is the best thing for bub tho. And yep, every day in will make a huge difference for her! :) I hope you can get a little further to make her journey easier.

3
What's Your Story? Tell us. / Re: Back for round 3
« on: June 15, 2018 at 11:22 AM »
I'm so glad things have settled down for you and bub is ok in there :) Hopefully you can keep her in a little longer. You have done so well to get her this far too!

4
What's Your Story? Tell us. / Re: Pregnant again after early loss
« on: June 06, 2018 at 10:40 PM »
Thanks. Yep it has definitely been full on! I am hoping we can make it to full term and the fluid doesn't increase again.

5
What's Your Story? Tell us. / Re: Pregnant again after early loss
« on: June 06, 2018 at 09:32 AM »
Got the MRI results back. Bub definitely has partial agenesis of the corpus callosum. He also has fluid on his brain again, which is only mild, but they want to keep a close eye on it. Because if it gets severe they may need to deliver early.

6
What's Your Story? Tell us. / Re: Pregnant again after early loss
« on: June 03, 2018 at 01:43 AM »
Yep, it is! :D Thanks!

7
What's Your Story? Tell us. / Re: Back for round 3
« on: June 03, 2018 at 01:39 AM »
Oh that sucks about having to have insulin shots! I do hope it helps control the GD tho :) How cute your little girl is so active too! She must be doing well in there :)

8
What's Your Story? Tell us. / Re: Pregnant again after early loss
« on: June 02, 2018 at 06:32 AM »
Thanks guys! His growth is going really well :) He's actually jumped up to 58th percentile in growth!!! :O The dr asked me if I was sure I didn't have gd because it was such a big jump. But I didn't have gd according to my gtt so I am guessing he is just growing well? He still has short little legs tho which is cute, haha.

We are 29 weeks today :D Had another ultrasound yesterday as well and he is looking really healthy. The dr was so positive and said based on the scans he doubts he has t13 or 18. He did say scans aren't 100% diagnostic, but with a baby with one of those trisomies he would expect to see severe malformations. Which he isn't seeing.

They do still think bub has partial agenesis of the corpus callosum. And possibly Ds. But honestly if that is all it is it's fine. I just want to have a happy bubba to take home, even if he does have some challenges!

Oh, cl was also really good! Still waiting on the follow up MRI report for his brain in  more detail, but either way the prognosis is looking much better than they were originally saying.

9
What's Your Story? Tell us. / Re: Pregnant again after early loss
« on: May 24, 2018 at 07:00 AM »
Had another ultrasound today. Bub is now breech, and my cl is a little longer. Yay!! I think maybe him not being head down is taking some of the pressure off?  So relieved!

10
What's Your Story? Tell us. / Re: Back for round 3
« on: May 22, 2018 at 11:25 PM »
That's great news that your little girl is growing  and you have better blood flow to the placenta! 27 weeks is awesome too! Past the micro Premmie stage!

That sucks about the GD and the cervix length being shorter. Hopefully you don't have any more contractions and you can cook bub for much longer :)

11
Congratulations, OBmum!! So glad things went well and your little bubba arrived safe and sound !! :D

12
What's Your Story? Tell us. / Re: Pregnant again after early loss
« on: May 19, 2018 at 04:02 AM »
Awesome! That's great, mekvien! :D So happy for you! 27+5 is so close to 28 weeks too!

13
What's Your Story? Tell us. / Re: Pregnant again after early loss
« on: May 19, 2018 at 01:38 AM »
27 weeks today!! Haven't had any contractions or bleeding for a few days!    :D I am sooo stoked to have made it this far!

Trying to think positive about bubs health. We won't know more till our next MRI and neurologist appointment. But hopefully all works out fine.

Hope everyone else is going good and still cooking? :)

14
What's Your Story? Tell us. / Re: Pregnant again after early loss
« on: May 17, 2018 at 01:34 AM »
:O That would have been scary! I'm so glad your son doesn't have it.

Thanks. Next MRI and ultrasound isn't for 2 weeks. Really hoping it's better news!

15
What's Your Story? Tell us. / Re: Pregnant again after early loss
« on: May 12, 2018 at 02:48 AM »
We havent met with a genetic counsellor yet. I don't know if I will do the amnio. I really want to know what's going on, but I don't want to risk it sending me into labour! I also don't feel I could ever decide to do comfort care for him tho even if it was something terrible.

Aside from his brain, he looks really healthy, so I can't work out why they are saying it could be t13 or 18! Or something else.  I just hope they are wrong :( If it's just
down syndrome that doesn't worry me but I don't know what would happen with a different syndrome.

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