Author Topic: 22 weeks with bicornuate uterus  (Read 1474 times)

pmm

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22 weeks with bicornuate uterus
« on: January 15, 2010 at 08:19 PM »
Hi, i am new to the forum. i am 22 weeks pregnant (first time) and i have been on bedrest for 1 month. my first ultrasound showed i had a bicornuate uterus. while aware of possible future complications, everything seemed fine.  at 18 weeks i got back from a long work trip, and we went in for a standard 2nd IPS ultrasound (feeling perfectly normal) which showed that there was liquid in my cervix and that my cervix had shortened to 7mm. feeling no symptoms i as rushed to the high risk unit where  I had an emergency cerclage due to my "incompetent' cervix. i was placed on rather strict bed rest (no sitting fully up, only 40%-60% incline) and i can get up for the washroom and one quick shower a day. i see a specialist, &  neonatalogist and have multiple ultrasounds each week. i also receive home care from high risk unit nurses (I am Canadian, this is what socialized medical care gets you - yippee). my partner has been amazing. he does all cooking, cleaning. he prepares all my meals, snacks, shakes each morning when he goes to work and i have a little bar fridge and microwave near the couch in my sick room. i have managed to work out that i can work remotely from home - which keeps me busy 9am-6pm, so my mental sanity is not being affected. i am 200mg of progesterone each night but that's it at this stage. i have been told that i will remain on bedrest for as long as my pregnancy lasts - i have been told i have a 50/ 50 chance of making it to 30 weeks. my aim is 36 - which would mean 14 weeks more of bedrest. somewhat daunting. i don't feel like i have any right to complain due to the support i have. but it is no vacation... knowing i am high risk for preterm delivery, a lot of my spare time has been spent researching data on disability levels associated with different gestation periods. it is difficult planning for a preemie - most of the literature is more focused on when it happens, not on preparing for it if you know it is most likely

mvp_57

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22 weeks with bicornuate uterus
« Reply #1 on: January 19, 2010 at 10:40 AM »
hi there,

Welcome to the forum! Good to hear that you're doing well and have a great support system. I think I'll move to Canada:) I hear their maternity leave is 12 mos w/c can be split with the father? That's fabulous! Anyway, I thought I'd reply to your message b/c my situation was very similar to yours -- on bedrest at 23 weeks due to shortening cervix (yes, it was incompetent) and a bicornuate uterus. I wasn't aware that I had a BCU until my first ultrasound either and it was too late for me to get a cerclage. After 6 weeks on bedrest, my beautiful baby girl was born and she's now happy, healthy 2 year old. Hopefully, some of the details of my story will be helpful to you(http://forum.keepemcookin.com/index.php?topic=11.msg13#msg13).

Having a laptop w/ Internet access and noting down my daily progress, along with everything the doctors said in a calendar were extremely helpful for me. One thing I learned is that every DAY counts, so celebrate each day as a milestone! Do try to take it easy. I’m a workaholic and had I not been forced to stay put, I probably would not have made it as far as 29 weeks. Knowing what I know now about how to prevent preterm labor, I would not have gotten up to use the commode as frequently as I had during those last few days. Continue to stay positive, but allow yourself the freedom to relax (as best as you can). Even if you're not in the office, working still inevitably puts stress on your mind and body. Plus, setting a barrier helps people understand that a high-risk pregnancy is just that - it's not like you're on vacation just b/c you're on bedrest.

I understand your need to research complications caused by prematurity. I have to say though that it helped that I didn’t know about every possible thing that could go wrong. Frankly, I don’t know if I could have stayed positive if I had. My husband and I researched things as they came up (because doctors never give you the complete answers). Two things I would research in your area are: 1) The nearest hospital with a Level 3 NICU (http://preemies.about.com/od/allaboutthenicu/a/NICUPart1.htm) and talk to your doctor about the possibility of delivering there so that your baby doesn’t have to be transported, 2) Check w/ your insurance about getting a private room in case you have to stay in the hospital toward the last few weeks of your pregnancy.

One last thing...you DO have the right to complain. It’s going to (hopefully) be a long ride, so you’ll experience the ups and downs like the rest of us. That’s what forums are for, right? I wish you and your baby all the best!

pmm

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Re: 22 weeks with bicornuate uterus
« Reply #2 on: January 19, 2010 at 07:46 PM »
Glad to know that everything worked out for you. Thanks for the pointers - we are 10 min away from a hospitl with the high risk ward, and so it is recommended i go there if in labour. i am covered for a private room if i end up in the hos[ital later on. my partner worries about my work stress, but at this point, staying engaged has really helped me not get down about this. my boss is very supportive and do if i want to stop working, that can b worked out. i will continue as long as i feel it is adding value to my state-of-mind/ wellness. i am able to go on disability if needed before the pregnancy (one doesn't want to eat into the 12 month (@ 93% salary) parental leave - especially my partner as we plan on sharing it). regarding other activities, this week i planned on writing amnesty international letters (* other good citizen activities) but ended up reading 10 books - thank goodness the libraries offer delivery services. i highly recommend it for others on bedrest. your local library drops off & picks up the books you want (no overdue fines) as part of their outreach services. i had 40 books dropped off for the last month! another week down, many more to go...