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Author Topic: **Updated Again** Bedrest 19 weeks +  (Read 7754 times)

ButtonsAndSecrets

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**Updated Again** Bedrest 19 weeks +
« on: April 24, 2015 at 01:32 AM »
Hello everyone!

I am Michelle and am currently on day 10 of complete bedrest. I was put on bedrest at 19 weeks 3 days (now 21 weeks) due to a clot and shortened cervix. They didn't want to do the stitch or disk in fear it may rupture the clot so my OB has put me on progesterone and so far it's working. However, I had to instantly quit my job and now lay around all day (only allowed up for the washroom) and I'm going nuts already.

The instant change of pace has been a super hard and stressful transition for me. I've been mostly reading, watching tv, color by number, and journaling as I don't find much enjoyment in crochet, cross stitch, video games, or crosswords. I'm super happy to have found a place where I'm not the only one going through this as I've had a really hard time because all my friends "wish they could do nothing all day" and don't realize how incredibly hard it is to not be able to do anything for yourself and have to depend on others. It's just really nice to know and have a place exist where I'm not the only one who is going through this.

I look forward to getting to know you all :)

Michelle
« Last Edit: June 01, 2015 at 05:50 PM by ButtonsAndSecrets »

vanne

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Re: New Here
« Reply #1 on: April 24, 2015 at 03:56 PM »
Hi Michelle!  The first 2 weeks are the hardest!  Hang in there!  It sounds like you're doing all the right things to keep yourself busy and supported.  Good luck!

ParijatDesh

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Re: New Here
« Reply #2 on: April 24, 2015 at 04:57 PM »
Hi Michelle!

So sorry to hear you have these complications to deal with. Like vanne said, the first 2 weeks are definitely the hardest. And then you will settle into your new routine.

The stress of bedrest is very difficult for people to understand. It sounds like you have a great plan in place to settle into what I hope is a long pregnancy at home. The KEC community is amazing for mamas on bedrest. Angela hosts a chat every Tuesday where it's a great way to connect with moms and get your questions answered live! She's also on twitter and great about answering questions and providing resources!

If you ever feel like you want a little extra support beyond the forum and chat and want to talk please let me know. I am a former high-risk mom (bedrest for 18 weeks) and a mom of a micropreemie. I now work with moms on bedrest and preemie parents to offer the 1:1 support that I had to keep my stress low.

I'm offering 2 FREE 1-hour sessions until 4/30 so please feel free to reach out. You can learn more from my post yesterday http://forum.keepemcookin.com/index.php?topic=3713.0

Welcome to KEC! Wishing you a very long, boring, uneventful pregnancy. You're doing great!
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Micropreemie mom & Perinatal Wellness Counselor

Helping moms with a high-risk pregnancy & on bed rest feel calmer and more confident so they can have healthier pregnancies and healthier babies.

Comprehensive, personalized support specifically for high-risk moms: http://bit.ly/laborofloveHRP

ButtonsAndSecrets

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Re: New Here
« Reply #3 on: April 25, 2015 at 01:12 AM »
Thanks ladies! Glad to know there is a "hump" to get over. It's not normal yet and I still want to *fight* it and just go back to work and resume life as I knew it but I know that's not what is going to happen and I need to adjust 'cuz that's what is best for baby. Hopefully it starts to get a bit easier soon.

Hevuva

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Re: New Here
« Reply #4 on: April 28, 2015 at 06:05 PM »
Is the clot an SCH?

What you've heard has been true for me: the first 48 hours were the worst, and after 2 weeks I was just used to it.

It's hard for anyone who has not personally been in the terrifying situation of feeling like your every move could harm your child to understand what this is like, and how helpless it can make you feel. But you are doing something - the most important thing of all - by resting!

Good luck! HJA

ButtonsAndSecrets

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Re: New Here
« Reply #5 on: May 13, 2015 at 01:51 AM »
Just an up date. I am now 23 weeks 5 days.

I had my routine weekly ultrasound yesterday and they have shown I am not stabalized as they thought but rather have a dynamic cervix which means my cervix changes all the time and could completely go away without notice. This lead to the rest of the day in the hospital.

The blood clot I had before has now resolved so they decided to go ahead and do the pessary disk in hopes to help take pressure off of the cervix and keep things at a state where our baby girl stays put where she is.

They also administered two rounds of steroids, one yesterday and one today. They are boosting development to try to give her the best fighting chance she can get if she comes early. We are awaiting our consult with the NICU team as they suspect if my cervix craps out it will cause pre-term labor.

 It's scary and they had the birth and death talks as survival is not great typically at this gestational age. I'm terrified of everything right now. i just want her to stay put and be a healthy full term baby girl that lives. I'm so absolutely lost at this point.

ParijatDesh

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Re: **Updated** Bedrest 19 weeks +
« Reply #6 on: May 13, 2015 at 07:07 PM »
Hi Michelle,

Gosh I remember how scary that was. I had a dynamic cervix after an SCH too. I landed in the hospital at 22+4 already 3cm dilated so the fact that you're 23+5 and not dilated is GREAT!

But I know that doesn't help the fact that it is terrifying. You have no idea what to think or say or do. You're just waiting with every breath and fiber of your being hoping with everything you have that things turn around and get less riskier so your little girl can stay in.

Have you had your neo consult yet? If not, here's a quick cheat sheet I give moms on hospital bedrest as a place to start http://bit.ly/1zL3PP1

Also, it is SO important that you keep your stress low to prolong your pregnancy. Just as much as we want the pessary to work, we need you to stay stress free to prevent contractions.

I want to encourage you to find something to laugh at on a daily basis because laughter has an anti-stress effect on the entire body. I also want to encourage you to do some progressive relaxation as that also has a profound whole body de-stressing effect.

If you are able to use your hands, coloring is another great tool that I suggest to my moms. There are some easy mandalas or coloring pages your partner or family member can print from the internet for free.

If you're up for it, I have a Preparing for Preemies teleseminar recording that you can download for free here http://bit.ly/1zGq5t2. I did that recording for moms in your position who are lost, scared and don't have anything to count on except the uncertainty of what could happen.

I will be keeping you in my thoughts and will check in with you soon. Please reach out sooner if you're feeling scared and need some support ok? You can do this!
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Micropreemie mom & Perinatal Wellness Counselor

Helping moms with a high-risk pregnancy & on bed rest feel calmer and more confident so they can have healthier pregnancies and healthier babies.

Comprehensive, personalized support specifically for high-risk moms: http://bit.ly/laborofloveHRP

Aggiette03

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Re: **Updated** Bedrest 19 weeks +
« Reply #7 on: May 13, 2015 at 10:07 PM »
Hi, Michelle!

Do you know how short your cervix was when they decided to wait on the cerclage and how short it was when they finally did something? I have a short cervix from a LEEP in '05 and either "dynamic" or the measurements are unreliable. I was pushing for a cerclage, but my perinatalogist doesn't think it's necessary: the lowest measurement they've settled on so far is 2.9 with no funneling/dilation. I'm still worried, of course and no one I know has been in this situation before! Thank you in advance and hoping we all keep them cooking!

ButtonsAndSecrets

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Re: **Updated** Bedrest 19 weeks +
« Reply #8 on: May 19, 2015 at 10:07 PM »
ParijatDesh we are still waiting for our NICU consult. There was confusion at the hospital and discharged me before they gave it so now another has been requested so hopefully I find out the date of that this week sometime.

Aggiette03 they told me anything 3.0 and over is considered normal and when it get's under 2.5 they start to worry and talk procedures.

When they first caught mine at my 18-20 week ultrasound it was measuring 1.9 and they sent me up for a consult. I never made it to that consult as 5 days after my ultrasound I was in the hospital for bleeding. That day it measured in at only .925 but they could only give me progesterone as I had a clot between the placenta and cervix. This didn't allow for the pessary disk or cerclage at that time.

They *thought* I was getting better as my weekly ultrasounds after that measured, 1.1 then 1.5 and 2.2 but then the last one at 23 weeks came back at .735 with funneling and I ended up in labor and assessment at the hospital again. This is when they put in the pessary disk (I have reactions to anesthetic so they really didn't want to put me under for the cerclage) and gave me my first round of steroids and I had to go back the next day for the second dose.

It's been a HUGE learning curve for me and I'd be lying if I said it wasn't scary or hard but just trust your body and listen to the specialists and doctors and educate an ask questions as much as you possibly can.

Aggiette03 - What week are you at? I'm not sure if there is private messaging here but please feel free to message me and we can talk more - I know how alone and scared I felt/feel as I don't know anyone else with this either.

ParijatDesh

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Re: **Updated** Bedrest 19 weeks +
« Reply #9 on: May 20, 2015 at 06:12 PM »
Hi Michelle,

Great to hear from you! I hope you're able to have the neo consult soon. Feel free to use that checklist (linked above) as a starting point. I'm also open to jumping on the phone with you before the appointment if you'd like so you don't have to figure out how to do that appointment on your own!

Angiette03: I had a dynamic cervix as well. It is so stressful and crazy but I did not qualify for the cerclage either. Let me know if I can answer any questions or ease any worries.

Wishing you both well. Please reach out if there's anything I can do to help.

Take care,
Parijat
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Micropreemie mom & Perinatal Wellness Counselor

Helping moms with a high-risk pregnancy & on bed rest feel calmer and more confident so they can have healthier pregnancies and healthier babies.

Comprehensive, personalized support specifically for high-risk moms: http://bit.ly/laborofloveHRP

ButtonsAndSecrets

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Re: **Updated** Bedrest 19 weeks +
« Reply #10 on: May 26, 2015 at 01:52 AM »
Ultrasound today showed I'm stable at 25 weeks 4 days!

Baby girl is 1lb 13oz now!

Gonna keep her cookin' as long as I possibly can.

Really enjoying the AC in our new home to beat the heat we are having here in Alberta, Canada.

No overheating for the two of us and no pre term labor if I can at all help it :)


ParijatDesh

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Re: **Updated** Bedrest 19 weeks +
« Reply #11 on: May 26, 2015 at 06:10 PM »
Wonderful news Michelle! Keep on going! :)
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Micropreemie mom & Perinatal Wellness Counselor

Helping moms with a high-risk pregnancy & on bed rest feel calmer and more confident so they can have healthier pregnancies and healthier babies.

Comprehensive, personalized support specifically for high-risk moms: http://bit.ly/laborofloveHRP

ButtonsAndSecrets

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Re: **Updated Again** Bedrest 19 weeks +
« Reply #12 on: June 01, 2015 at 05:53 PM »
Well my luck at home came to an end.

Thursday I was admitted to the hospital for bedrest because my cervix keeps getting shorter every ultrasound.

26 weeks 4 days and hoping to keep baby girl cookin' to full term <3

Hospital adjustment has been hard but I'm starting to settle in. I cry a lot now but that's just my way of processing everything it seems and getting it out. My room mate is very nice and helpful getting me used to things to here, hopefully 11-14 weeks to go.

wbondger

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Re: **Updated Again** Bedrest 19 weeks +
« Reply #13 on: June 02, 2015 at 04:43 AM »
Best of luck, Buttons and Secrets! With my last pregnancy, I was on hospital bedrest from 24/25 weeks and made it to 32 weeks. I could probably have lasted longer but they were worried about the placenta and did an emergency C-section. Hang in there! You can do it!

GiveMeSushi!

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Re: **Updated Again** Bedrest 19 weeks +
« Reply #14 on: June 02, 2015 at 02:03 PM »
Sorry you have to be in the hospital!  You can totally keep that baby in!!  Sending good vibes your way :)