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Author Topic: Pregnant again after early loss  (Read 2089 times)

Jadeandrainbowbub

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Re: Pregnant again after early loss
« Reply #15 on: March 15, 2018 at 11:40 PM »
Hey! : :D Don't mind at all! How cool that we all have due dates so close! That's so awesome.

That sounds very isolating living on an Army base. Do you have any support where you are, while you are on bed rest? :) Being on bed rest is hard, let alone when friends are so far away.

How exciting about your upcoming scan! I can't wait for mine either! It's in 12 days. I'm counting down, haha! I am sure you will feel some kicks soon. It's so sweet :) I didn't feel much at all with my first pregnancy till around 19 or 20 weeks, I think. So I am sure you will feel them soon. The little kicks and movements are the one part of pregnancy I like! Lol.

Jadeandrainbowbub

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Re: Pregnant again after early loss
« Reply #16 on: March 28, 2018 at 03:09 AM »
So, it's been a while since I updated. I've had a lot going on, especially with issues with bub. :( My last scan showed mild swelling on his brain. I am very worried on what our outcome will be, especially since they can't really tell us what will happen. We are having high level scans to monitor and been referred to see a brain specialist. Also lost 2cm in cl. It was quite long before but now is only just 3cm. Which I think is still fairly good, but I lost 2cm in two weeks! So I am really worried because what if I keep losing cl at that rate??? So worried :(

EnglishRose23

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Re: Pregnant again after early loss
« Reply #17 on: March 28, 2018 at 05:27 PM »
That sounds terrifying, let me know how it goes with the specialist! 3cm is still good for length but I can definitely understand why you are worried about the decrease. Have they put you back on bedrest?

Hope this scare resolves well for you and baby. You'll be in my thoughts

Jadeandrainbowbub

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Re: Pregnant again after early loss
« Reply #18 on: March 30, 2018 at 07:12 AM »
Thank you. I am ready worried. Had an appointment with my specialist who said the swelling is now not mild, it's moderate. :( And I have now been referred to a high level hospital 4 hours away that specialises in these sort of issues. Meant to get a call in the next day or two for when our appointment is. I'm so worried.

Jadeandrainbowbub

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Re: Pregnant again after early loss
« Reply #19 on: March 30, 2018 at 07:24 AM »
And no, they haven't put me on bed rest as they said they aren't worried at 3cm. It's just how fast it has shortened that has worried me. So I don't know whether to put myself back on it anyway or not...

OBmom

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Re: Pregnant again after early loss
« Reply #20 on: April 04, 2018 at 01:01 PM »
Aw Jade that sounds super scary.
Do the doctors have any explanation for this? Are there any associated findings?
More important, how are you dealing with this? 3 cm of CL is still pretty good, I wouldn't go on bed rest just yet. Especially since you have a long trip to plan. Do you have company to go? Maybe not driving yourself should be an option.
Thinking of you and hoping for the best possible outcome.

Jadeandrainbowbub

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Re: Pregnant again after early loss
« Reply #21 on: April 16, 2018 at 10:33 AM »
The doctors are saying it could be because he may have downs syndrome. They aren't sure though.  They also thought it could be an infection causing it, but my torch test came back clear, so it wasn't an infection.  Then they said is that sometimes it just happens. The ultrasound hasn't shown a reason why. So really, we don't know. He also still has short femurs and a hypoplastic nasal bone, but other than that and the brain stuff, looks fine. He is also measuring on the smaller side, but nothing worrying.

Some days I feel optimistic, and other days I am really worried! We have been told if the swelling gets very severe, he may be born early so that they can place a shunt. Just to relieve pressure on his brain. I just wish I could fast forward the next few months until his birth, and everything would be fine. The not knowing is so stressful, and different drs have told me different potential outcomes for bub. One dr told me he may have cerebral palsy or seizures after birth from all the pressure :( Or be very developmentally delayed. Another dr has been more positive and said in many cases babies are fine.

My cl has shortened as well, to 2.8. They haven't seemed  concerned about it though. They are more worried about the brain condition.

My next ultrasound and mri is on the 3rd, and it feels forever away! The positive thing is tho, that I am 22+2 today. Getting closer to viability!! I feel like once I get to 24 weeks, I will be able to breathe a little!

Jadeandrainbowbub

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Re: Pregnant again after early loss
« Reply #22 on: April 16, 2018 at 10:48 AM »
Oh and my partner is travelling with me for our appointments. :) With every going on, I need him there. A few friends have offered to come up with me too if I need them, or babysit my kids, which is nice of them and a massive help.

EnglishRose23

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Re: Pregnant again after early loss
« Reply #23 on: April 17, 2018 at 12:58 AM »
Oh the not knowing must be so hard!! I hope your most optimistic dr ends up being right. Have they put you in touch with support groups and other resources in your community to help prepare you for coping with his Down's syndrome and other challenges? It can be so isolating having a sick child, really helps to get to know other parents in the same situation.

Jadeandrainbowbub

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Re: Pregnant again after early loss
« Reply #24 on: April 17, 2018 at 02:19 AM »
Yeah it is really hard. :(

 And no they haven't. I have had to research myself. I don't feel that I have received much help at all from my doctors in the way of support. I did join a  Facebook group for kids with T21, which has helpful information though, and is run by mums who have children with downs syndrome. It has been great! So informative and I have been getting to know a few of the mums through there. Seeing people with their kids who are doing well is so encouraging.

I also found a support group online for parents of kids with ventriculomegaly. It is encouraging to see the kids who have had good outcomes. It seems that more have positive outcomes than the drs project.

Jadeandrainbowbub

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Re: Pregnant again after early loss
« Reply #25 on: April 17, 2018 at 02:20 AM »
How are you doing English Rose and OB mum? Hope things are going ok on your ends :)

Jadeandrainbowbub

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Re: Pregnant again after early loss
« Reply #26 on: April 28, 2018 at 05:05 AM »
24 weeks finally!! :D I am so, so relieved to have reached this milestone. Ultrasound in five days for growth, brain scan, fetal echo and cl.

EnglishRose23

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Re: Pregnant again after early loss
« Reply #27 on: April 29, 2018 at 07:11 PM »
Hooray for 24 weeks!!! Moms with normal pregnancies could never understand what a huge milestone this is for us. Hope is everything.  Let me know how your scans go later this week :)

Jadeandrainbowbub

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Re: Pregnant again after early loss
« Reply #28 on: April 30, 2018 at 07:37 AM »
Yep!! That is so true!! :) I have been counting down till this point for what seems like forever. Lol. Now I am counting each day on top of 24 as an extra achievement as well :) You would be 24 or almost there too now??

Will let you know how I go with the scan :)

OBmom

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Re: Pregnant again after early loss
« Reply #29 on: April 30, 2018 at 08:12 AM »
Congrats on making it to this ever-important week! I've been rooting for you  :D
And you're exactly right, every day is an achievement on it's own now!

Hoping for good news on your next scan, keep us posted!